Resources
Displaying 1 - 25 of 88 results
Topic Brief
Topic Brief: Infantile Epilepsy
Epilepsy is more common in children than adults, with several epilepsy syndromes exclusive to the pediatric population. In this Topic Brief, the authors identified 401 relevant empirical studies reporting specifically…
Stakeholder Convening
Part 3 - Elective and Urgent Surgeries amid COVID-19 -- Summary Report (April 14, 2020)
Confronting COVID-19: Finding Hospital Capacity and Improving Patient Flow A Webinar Series Hosted by PCORI for Hospitals and Health Systems On April 14, 2020, PCORI continued the webinar series with…
Stakeholder Convening
Part 4 - Nurse Staffing amid COVID-19 -- Summary Report (April 21, 2020)
Confronting COVID-19: Finding Hospital Capacity and Improving Patient Flow A Webinar Series Hosted by PCORI for Hospitals and Health Systems On April 21, 2020, PCORI continued the webinar series with…
Engagement Award Final Summary Report
Workshops to Transform the Health Care of Women with Disabilities
This multipart project included a survey of women and healthcare providers regarding obstetrical, gynecological, and breast care for women with disabilities; a review and analysis of survey data by broadly…
Engagement Award Final Summary Report
Enhancing Patient- and Family-Centered Care through Learning, Discovery, and Engagement
This symposium served as a vehicle for clarifying and exploring conceptual and practical interconnections among the organization’s patient experience, patient engagement, and learning healthcare system initiatives. Project Lead: Daniel Davis…
Engagement Award Final Summary Report
Patient-Directed Outcomes for Skin Cancer
This summit was held in August 2016 in Arlington, Virginia, and convened physicians, patients, the cancer support community, and researchers in meaningful dialogue to better understand how skin cancer patients…
Engagement Award Final Summary Report
2016 Guidelines International Network (G-I-N) Conference, Philadelphia
This conference was held in September 2016 in Philadelphia, Pennsylvania, bringing together a host of healthcare providers, clinical guideline developers, researchers, policy makers, insurers, patients/patient representatives, patient advocates, and other…
Engagement Award Final Summary Report
Summit and White Paper Report: Patient-Centered Outcomes and Age-Related Macular Degeneration
This national summit held in October 2017 in Boston, Massachusetts, convened patients who have experienced vision loss from age-related macular degeneration (AMD), AMD patient caregivers, vision advocacy leaders, vision researchers…
Engagement Award Final Summary Report
Convening Patients with Celiac Disease to Improve Patient-Centered Outcomes Research (PCOR)
This community convening was intended to build and give voice to a new community of fully engaged stakeholders for the purpose of identifying, facilitating, and delivering desired outcomes to celiac…
Engagement Award Final Summary Report
A Convening to Address Missed and Delayed Diagnosis of Heart Disease in Women
This convening was intended to advance the body of knowledge on missed and delayed diagnosis of heart disease in women and increase interest in comparative clinical effectiveness research and patient-centered…
Engagement Award Final Summary Report
2CEERIAS - Phase II of Community Engagement for Early Stroke Recognition and Immediate Action in Stroke (CEERIAS) in the COVID-19 Environment
This project adopted the CEERIAS in-person approach from the PCORI-funded CEERIAS study, to the COVID-19 environment using virtual platforms such as video, radio, social media, and texting for community and…
Engagement Award Final Summary Report
Convening PCOR/CER Stakeholders to Address Issues in Rural Perinatal Health
This conference convened PCORI-funded research groups and multi-stakeholder groups to accelerate perinatal depression patient-centered outcomes research/comparative clinical effectiveness research in rural communities. Project Lead: Kelli Ryckman, PhD, MS Organization: University…
Engagement Award Final Summary Report
A PCOR/CER Partnering Guide
This project involved patients and stakeholders in collaborative production, initially as redesigners to adapt the existing engagement tool, Integrating Behavioral Health and Primary Care (IBH-PC), into the PCOR/CER Partnering Guide…
Engagement Award Final Summary Report
Suicide Prevention - Unified Research in Western Colorado (SPUR)
This series of convenings brought together stakeholders engaged in suicide prevention to share evidence-based practices in reducing suicide incidence in western Colorado and develop a patient-centered outcomes research/comparative clinical effectiveness…
Engagement Award Final Summary Report
Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19
This project, in partnership with Smart from the Start, sought to learn directly from members of underserved communities about challenges created by COVID-19 that must be addressed to facilitate partnership…
Engagement Award Final Summary Report
Four Corners Convened: A National Gathering of Experts in TNB Participatory Research
Howard Brown Health, in partnership with Four Corners, convened transgender and nonbinary (TNB) community leaders, patients, clinicians and researchers at The Next STEP (Supporting TNB Engagement in PCOR) Convening to…
Awardee Resource
Sample Invoice Template
Invoices submitted to PCORI must contain all of the information requested in the Sample Invoice Template to allow PCORI to examine costs incurred during the Research Project.
Awardee Resource
Cost Considerations: Description of Allowable Direct Costs under a PCORI Award
Used by PCORI to evaluate the allowability and reasonableness of budgets submitted through the application process and costs incurred in the performance of the Research Project.
Health Research Literature Resource
Engagement in Health Research Literature Explorer Supplemental Methods Information
Engagement Award Final Summary Report
Building a Sustainable PCO and PCOR Community Network to Achieve Patient, Researcher, and Clinician Partnerships
This initiative aimed to improve the understanding of the value of integrating patient-centered outcomes research in the healthcare community from the patient, provider, and community perspectives. Project Lead: Sarah Woolsey…
Engagement Award Final Summary Report
Franciscan Helps Families Connect (FHFC)
This project aimed to develop a network to connect parents of children with medical complexity (CMC) to each other and their key healthcare providers to identify the most common challenges…
Engagement Award Final Summary Report
Creating a Patient Stakeholder Council and Patient Partner Network: Resources for Colorado Patients
This project established the Colorado Patient Partners in Research (CoPPiR) Network, an online community that connects patient advisors with research teams. Leading this effort was the CoPPiR council, a diverse…
Engagement Award Final Summary Report
Effective Treatments Educational Forums
This project included two educational forums on patient-centered outcomes research and comparative effectiveness research that featured speakers representing patient groups, the research community, the healthcare sector, and government. Project Lead…
Engagement Award Final Summary Report
Virtual Conference Series for African-American Asthma Patients: Getting Involved with PCOR/CER
This project’s objectives focused on developing insights to inform emerging research needs as it relates to patients, future plans to expand Not One More Life (NOML) beyond asthma education to…