Resources
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PCORI Health Care Horizon Scanning System
Horizon Scanning High Potential Disruption Report -- May 2019
PCORI Health Care Horizon Scanning System
Horizon Scanning Status Report -- December 2019
PCORI Health Care Horizon Scanning System
Horizon Scanning Status Report -- September 2020
PCORI Health Care Horizon Scanning System
Horizon Scanning Status Report -- December 2020
PCORI Health Care Horizon Scanning System
Horizon Scanning COVID-19 Supplement High Impact Reports -- January 2021
PCORI Health Care Horizon Scanning System
Horizon Scanning Status Report -- March 2021
Engagement Award Final Summary Report
Workshops to Transform the Health Care of Women with Disabilities
This multipart project included a survey of women and healthcare providers regarding obstetrical, gynecological, and breast care for women with disabilities; a review and analysis of survey data by broadly…
Engagement Award Final Summary Report
Enhancing Patient- and Family-Centered Care through Learning, Discovery, and Engagement
This symposium served as a vehicle for clarifying and exploring conceptual and practical interconnections among the organization’s patient experience, patient engagement, and learning healthcare system initiatives. Project Lead: Daniel Davis…
Engagement Award Final Summary Report
Patient-Directed Outcomes for Skin Cancer
This summit was held in August 2016 in Arlington, Virginia, and convened physicians, patients, the cancer support community, and researchers in meaningful dialogue to better understand how skin cancer patients…
Engagement Award Final Summary Report
2016 Guidelines International Network (G-I-N) Conference, Philadelphia
This conference was held in September 2016 in Philadelphia, Pennsylvania, bringing together a host of healthcare providers, clinical guideline developers, researchers, policy makers, insurers, patients/patient representatives, patient advocates, and other…
Engagement Award Final Summary Report
Summit and White Paper Report: Patient-Centered Outcomes and Age-Related Macular Degeneration
This national summit held in October 2017 in Boston, Massachusetts, convened patients who have experienced vision loss from age-related macular degeneration (AMD), AMD patient caregivers, vision advocacy leaders, vision researchers…
PCORI Health Care Horizon Scanning System
Horizon Scanning COVID-19 Supplement High Impact Reports -- April 2021
Engagement Award Final Summary Report
Convening Patients with Celiac Disease to Improve Patient-Centered Outcomes Research (PCOR)
This community convening was intended to build and give voice to a new community of fully engaged stakeholders for the purpose of identifying, facilitating, and delivering desired outcomes to celiac…
Engagement Award Final Summary Report
A Convening to Address Missed and Delayed Diagnosis of Heart Disease in Women
This convening was intended to advance the body of knowledge on missed and delayed diagnosis of heart disease in women and increase interest in comparative clinical effectiveness research and patient-centered…
Engagement Award Final Summary Report
2CEERIAS - Phase II of Community Engagement for Early Stroke Recognition and Immediate Action in Stroke (CEERIAS) in the COVID-19 Environment
This project adopted the CEERIAS in-person approach from the PCORI-funded CEERIAS study, to the COVID-19 environment using virtual platforms such as video, radio, social media, and texting for community and…
Engagement Award Final Summary Report
Convening PCOR/CER Stakeholders to Address Issues in Rural Perinatal Health
This conference convened PCORI-funded research groups and multi-stakeholder groups to accelerate perinatal depression patient-centered outcomes research/comparative clinical effectiveness research in rural communities. Project Lead: Kelli Ryckman, PhD, MS Organization: University…
Engagement Award Final Summary Report
A PCOR/CER Partnering Guide
This project involved patients and stakeholders in collaborative production, initially as redesigners to adapt the existing engagement tool, Integrating Behavioral Health and Primary Care (IBH-PC), into the PCOR/CER Partnering Guide…
Engagement Award Final Summary Report
Suicide Prevention - Unified Research in Western Colorado (SPUR)
This series of convenings brought together stakeholders engaged in suicide prevention to share evidence-based practices in reducing suicide incidence in western Colorado and develop a patient-centered outcomes research/comparative clinical effectiveness…
Engagement Award Final Summary Report
Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19
This project, in partnership with Smart from the Start, sought to learn directly from members of underserved communities about challenges created by COVID-19 that must be addressed to facilitate partnership…
PCORI Health Care Horizon Scanning System