This multipart project included a survey of women and healthcare providers regarding obstetrical, gynecological, and breast care for women with disabilities; a review and analysis of survey data by broadly…

This symposium served as a vehicle for clarifying and exploring conceptual and practical interconnections among the organization’s patient experience, patient engagement, and learning healthcare system initiatives. Project Lead: Daniel Davis…

This summit was held in August 2016 in Arlington, Virginia, and convened physicians, patients, the cancer support community, and researchers in meaningful dialogue to better understand how skin cancer patients…

This conference was held in September 2016 in Philadelphia, Pennsylvania, bringing together a host of healthcare providers, clinical guideline developers, researchers, policy makers, insurers, patients/patient representatives, patient advocates, and other…

This national summit held in October 2017 in Boston, Massachusetts, convened patients who have experienced vision loss from age-related macular degeneration (AMD), AMD patient caregivers, vision advocacy leaders, vision researchers…

Engagement Award Final Summary Report This community convening was intended to build and give voice to a new community of fully engaged stakeholders for the purpose of identifying, facilitating, and…

Engagement Award Final Summary Report This convening was intended to advance the body of knowledge on missed and delayed diagnosis of heart disease in women and increase interest in comparative…

Engagement Award Final Summary Report This project adopted the CEERIAS in-person approach from the PCORI-funded CEERIAS study, to the COVID-19 environment using virtual platforms such as video, radio, social media…

Engagement Award Final Summary Report This conference convened PCORI-funded research groups and multi-stakeholder groups to accelerate perinatal depression patient-centered outcomes research/comparative clinical effectiveness research in rural communities. Project Lead: Kelli…

Epilepsy is more common in children than adults, with several epilepsy syndromes exclusive to the pediatric population. In this Topic Brief, the authors identified 401 relevant empirical studies reporting specifically…

This project included two educational forums on patient-centered outcomes research and comparative effectiveness research that featured speakers representing patient groups, the research community, the healthcare sector, and government. Project Lead…

Engagement Award Final Summary Report This project’s objectives focused on developing insights to inform emerging research needs as it relates to patients, future plans to expand Not One More Life…

Engagement Award Final Summary Report This project aimed to facilitate future research by understanding the factors most relevant to the successful use of telediagnosis and the best mechanisms for preparing…