Epilepsy is more common in children than adults, with several epilepsy syndromes exclusive to the pediatric population. In this Topic Brief, the authors identified 401 relevant empirical studies reporting specifically…

Engagement Award Final Summary Report This project involved patients and stakeholders in collaborative production, initially as redesigners to adapt the existing engagement tool, Integrating Behavioral Health and Primary Care (IBH-PC)…

Engagement Award Final Summary Report This series of convenings brought together stakeholders engaged in suicide prevention to share evidence-based practices in reducing suicide incidence in western Colorado and develop a…

This multipart project included a survey of women and healthcare providers regarding obstetrical, gynecological, and breast care for women with disabilities; a review and analysis of survey data by broadly…

This symposium served as a vehicle for clarifying and exploring conceptual and practical interconnections among the organization’s patient experience, patient engagement, and learning healthcare system initiatives. Project Lead: Daniel Davis…

This summit was held in August 2016 in Arlington, Virginia, and convened physicians, patients, the cancer support community, and researchers in meaningful dialogue to better understand how skin cancer patients…

This conference was held in September 2016 in Philadelphia, Pennsylvania, bringing together a host of healthcare providers, clinical guideline developers, researchers, policy makers, insurers, patients/patient representatives, patient advocates, and other…

This national summit held in October 2017 in Boston, Massachusetts, convened patients who have experienced vision loss from age-related macular degeneration (AMD), AMD patient caregivers, vision advocacy leaders, vision researchers…

Engagement Award Final Summary Report This community convening was intended to build and give voice to a new community of fully engaged stakeholders for the purpose of identifying, facilitating, and…

Engagement Award Final Summary Report This convening was intended to advance the body of knowledge on missed and delayed diagnosis of heart disease in women and increase interest in comparative…

Engagement Award Final Summary Report This project adopted the CEERIAS in-person approach from the PCORI-funded CEERIAS study, to the COVID-19 environment using virtual platforms such as video, radio, social media…

Engagement Award Final Summary Report This conference convened PCORI-funded research groups and multi-stakeholder groups to accelerate perinatal depression patient-centered outcomes research/comparative clinical effectiveness research in rural communities. Project Lead: Kelli…

Engagement Award Final Summary Report This project, in partnership with Smart from the Start, sought to learn directly from members of underserved communities about challenges created by COVID-19 that must…

Engagement Award Final Summary Report This project’s objectives focused on developing insights to inform emerging research needs as it relates to patients, future plans to expand Not One More Life…

Engagement Award Final Summary Report This project aimed to facilitate future research by understanding the factors most relevant to the successful use of telediagnosis and the best mechanisms for preparing…

Engagement Award Final Summary Report This project established a consortium where students, parents, educators, and community stakeholders were brought to the same table to identify the key concerns regarding Seattle…

Engagement Award Final Summary Report This convening series engaged Historically Black Colleges and Universities and partnered stakeholders in cardiovascular research, highlighting the intersection of COVID-19, mental health, and stakeholder engagement…

Engagement Award Final Summary Report The project team and its multi-state Special Olympics partners hosted a Health Research Summit focused on research collaboration and building capacity related to health disparities…

This project included two educational forums on patient-centered outcomes research and comparative effectiveness research that featured speakers representing patient groups, the research community, the healthcare sector, and government. Project Lead…

Engagement Award Final Summary Report This project developed a Peer Mentorship Program aimed at increasing patient engagement and improving chronic kidney disease (CKD) patients’ well-being by exposing them to proven…

Engagement Award Final Summary Report This initiative built a coalition of stakeholders in the premenstrual dysphoric disorder (PMDD) community to develop a strategic plan and guidelines for PMDD patient-centered outcomes…

Atrial fibrillation (AF) is the most common arrythmia, and the use of catheter, surgical, or hybrid (surgical combined with catheter) ablation is a strategy to restore a normal rhythm and…