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Engagement Award Final Summary Report
Patient Engagement in Benefit-Risk Assessment throughout the Life Cycle of Medical Products
Benefit-risk assessments of medical products are the foundation for making decisions about the product all through its life cycle. This conference aimed to provide baseline knowledge for targeted stakeholders (patients…
Engagement Award Final Summary Report
Race and COVID 19: Outcomes that Matter to the Black Community
This project sought to identify research questions, shaped by beliefs, values, and preferences, that address patient-centered outcomes that are most important to Black Americans. A network of community members and…
Engagement Award Final Summary Report
ChAPTER (Chicago coalition Around PCOR To Expand community Research)
This multi-stakeholder convening produced an infrastructure for sustained patient-centered outcomes research/comparative clinical effectiveness research (PCOR/CER) collaboration and dissemination, and an agenda for increased mental and behavioral health PCOR/CER. Project Lead…
Engagement Award Final Summary Report
The Annual Conference for Community Engaged Healthcare Improvement
This conference included a patient-centered outcomes research track supported by PCORI. The objective of this track was to promote effective strategies to implement, evaluate, and sustain innovations that improve patient…
Engagement Award Final Summary Report
Project ACCCES: A Collaboration to develop Capacity for Community Engaged research in Springfield
This project built community-engaged research partnerships to improve the health of the Springfield, Massachusetts, community through the development of a community-engaged research workshop series and other related activities with stakeholders…
Engagement Award Final Summary Report
Bladder Cancer Patient Survey Network for Research Prioritization
This initiative developed the Patient Survey Network as well as a list of prioritized research questions considered to be meaningful by bladder cancer patients and their caregivers. Project Lead: Angela…
Engagement Award Final Summary Report
Matching Actions to Needs: What Matters Most to the Arthritis Community?
This project strived to bring the patient voice to the forefront, unearthing the issues most important to the arthritis community through a series of nationwide listening sessions. Project Lead: Suzanne…
Engagement Award Final Summary Report
Building Capacity for Patient Centered Outcomes Research in Juvenile Detention
This project created a set of tools for teaching justice-involved young people, their families and detention center workers about patient-centered outcomes research (PCOR). The first resource is a toolkit to…
Final Research Report
A New Method to Create Personalized Treatment Guidance Using Patient Health Data
Final Research Report