- 2023 Annual Meeting
- The PCORI Strategic Plan
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- Dissemination and Implementation
- Evaluation and Analysis
- Healthcare Delivery and Disparities Research
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Past Opportunities to Provide Input
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
- Past Opportunities to Provide Input
About 37 million Americans live with chronic kidney disease (CKD) and may not know about their options for treatment or the benefits and harms of each choice.
A PCORI-funded research study that compared two ways to help older adults with advanced CKD and their care partners learn about and decide on a treatment found that an online decision aid about kidney replacement therapy helped patients improve decision quality and clarify treatment preferences, according to results appearing in Annals of Internal Medicine.^
For the study, the research team, led by Keren Ladin, PhD, MS, and Daniel E. Weiner, MD, MS, at Tufts University, followed 363 patients aged 70 years and older with advanced CKD across eight research sites. One group received the usual care, which included CKD education from a doctor plus a booklet on CKD treatment, while a second group received the usual care and access to the online interactive decision aid called Decision Aid for Renal Therapy, or DART.
Patients in the second group showed that their knowledge about decision making and the treatment preferences significantly improved at three months and at six months, with smaller improvements observed through a period of 18 months.
Posted: January 9, 2023
^ © 2022 American College of Physicians. Used with permission. Access to this article is for personal reading only, and unauthorized reproduction or distribution of this article is prohibited.
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