Intellectual and Developmental Disabilities (IDD)

6.5M

Approximately 6.5 million people are living with intellectual and developmental disabilities in the United States. (Centers for Disease Control and Prevention)

96

PCORI is supporting 96 research studies and other projects with a focus on intellectual and developmental disabilities. (As of April 2024)

$129M

PCORI has awarded more than $129 million to fund research studies and other projects on intellectual and developmental disabilities. (As of April 2024)

2023 PCORI Annual Meeting Breakout Session Spotlight

Improving Mental Health for People With IDD Through Patient-Centered Research

Read more about this session

Dismantling Ableism Through Partner-Driven Health Research

Read more about this session

A Multipronged Approach to Improving Health and Well-Being for Individuals with Intellectual and/or Developmental Disabilities

Funding researchBuilding capacity for PCOR
  • Full range of research awards and evidence synthesis projects
  • Identification of short- and long-term evidence gaps and priorities
  • Engagement awards
  • Community-building projects
  • Workforce awards
  • PCORnet® infrastructure awards
Dissemination and implementation activitiesEnhancing efficiency and research design
  • Increasing knowledge and awareness of findings from PCORI-funded research
  • Promoting changes in practice based on evidence from PCORI-funded studies
  • Understanding and providing guidance on methodologic issues
  • Increasing engagement in research

Spotlights: Ongoing Studies and Projects

Results that Support Better-Informed Decisions

Congress Identifies Intellectual and Developmental Disabilities as Research Priority


As part of the 2019 legislation that reauthorized PCORI’s funding for 10 years, Congress included research on intellectual and developmental disabilities as a priority research topic.

Evidence Updates from PCORI-Funded Studies


Antipsychotics for Children with Hyperactivity or Disruptive Disorders

Clinicians often prescribe antipsychotics for children and adolescents diagnosed with attention deficit hyperactivity disorder (ADHD) or disruptive, impulse-control, and conduct disorders (DICDs). A review of research studies weighed the benefits and harms of antipsychotic treatment for children diagnosed with ADHD and DICDs.

View the Evidence Update

Topic Briefs


Treatment for Insomnia and Other Sleep Disturbances Among Persons with Developmental Disabilities

Many IDDs are associated with increased risk for sleep disorders, which can contribute to or exacerbate cognitive or behavioral issues and cause stress for people with IDD and their caregivers. This topic brief aims to identify existing evidence for interventions to treat sleep disorders in children or adults with IDD.

View the Topic Brief

PCORI Stories


Breaking Down Barriers for Children with Intellectual and Developmental Disabilities and Their Families

Read about a world-famous puppeteer and a community activist who bring their firsthand experiences with disabilities to a PCORI-funded project to provide easier access to community venues for children with IDDs and their families.

Read the Story


Featured Videos

Advancing Health Equity through Research on Transitions for People with IDD

2022 PCORI Virtual Annual Meeting
October 26, 2022

Engaging People with Intellectual and Developmental Disabilities in Research

2021 PCORI Virtual Annual Meeting
November 18, 2021

Stakeholder Meetings/Workshops

PCORI-hosted stakeholder meetings and workshops offer the opportunity to gain insights and perspectives from members of different stakeholder communities. Watch these webinars to learn more.